Shine formerly the Association for Spina Bifida and Hydrocephalus is the leading UK registered charity providing information and advice about spina bifida and hydrocephalus.
Our involvement differs with each family or individual who contacts us. Some of the more common ways we help include:
- A dedicated helpline (charged at a local rate) - the helpline is staffed from Monday to Friday 10am – 4pm: messages can be left out of hours on our voicemail, and we will endeavour to return your call within 24 working hours.
- Support to families
- Help for adults and young people
- Information days
- Education advice
- Medical and health information
- Information for professionals
You can contact us on any matter relating to hydrocephalus or spina bifida for information or advice on everything from reducing the risk of having a baby with spina bifida, to independent living for adults with the disability.
ASBAH is here to offer its services to the whole spectrum of those affected by, or with an interest in, hydrocephalus or spina bifida - from before birth (with advice and support, whether or not the pregnancy continues), during childhood and right through adult life.
Our work is financed by voluntary donations, trading activities and grants from charitable and corporate trusts. We deeply appreciate the goodwill and generosity of the many individuals, community groups and companies who make it possible for us to work as a centre of excellence in our field.
We work in partnership with a network of independent affiliated Local Associations to share information and promote good practice, and also to deliver a range of high-quality support and specialist services.
ASBAH employs a network of advisers throughout England, Wales and Northern Ireland who deliver advice, support and advocacy services. Read on to find